Support Groups & Organizations

This shelf is designed for spina bifida and hydrocephalus associations, parent support groups, disabled persons organizations, non-governmental organizations, community-based organizations, programme coordinators, project managers, advocacy officers, House of Hope managers, and Centre of Excellence coordinators.

At this stage, the resources focus mainly on how organizations can support access to continence management services, training, awareness, community follow-up, caregiver education, and long-term support for people with spina bifida and hydrocephalus and their families.

The aim of this section is to help organizations strengthen their programmes, support families and communities, advocate for better services, organize training activities, improve follow-up systems, and share practical models such as House of Hope, Centres of Excellence, SHARE, SHINE, and Octagon approaches.