Parents & Caregivers

This shelf is designed for parents, family members, guardians, foster parents, House of Hope caregivers, and community caregivers supporting children, adolescents, or adults with spina bifida and hydrocephalus.

At this stage, the resources focus mainly on continence management, including clean intermittent catheterization, bowel management, hygiene, prevention of complications, daily routines, emotional support, and practical care at home or in the community.

The aim of this section is to help caregivers understand continence care, feel more confident in supporting daily management, recognize common challenges, and promote the health, dignity, independence, and inclusion of the person they care for.